CLL/SLL
CLL/SLL
Similar to the ACOR CLL listserv, they invite posts about CLL treatment, experiences, and research. Information is monitored by Dr. Richard Furman.
Health Unlocked - CLL (support for many English speaking communities, from the US to the UK to Australia)
HEALTH UNLOCKED
Daily posts, individually or as a daily digest, with patient questions, support, and information in a friendly environment. This site has about 23,400 members.
INFORMATIONAL SITES
CLL SOCIETY
Started by Dr. Brian Koffman, a CLL patient, this site provides up-to-date information about treatments, research, personal stories, and a list of CLL specialists.
PATIENT POWER
Started by Andrew Schorr, a CLL patient, this site has expanded to include information about other cancers, including pertinent articles and interviews with leading specialists.
FACEBOOK GROUPS:
CLL Society
CLL SOCIETY
CLL support group (Public)
SUPPORT GROUP PUBLIC
CLL Support Group for Young People (55 and under) (Private)
SUPPORT FOR 55 YEARS AND UNDER
CLL SURVIVORS & THRIVERS (Private)
CLL SURVIVORS & THRIVERS
SOCIAL NETWORKING SITES:
My Leukemia Team
MY LEUKEMIA TEAM
A social network site to provide emotional support and information for those living with leukemia. Information is monitored by Dr. Fatima Sharif.
Patients Like Me - CLL
PATIENTS LIKE ME
Smart Patients - CLL
SMART PATIENTS
CLL SUPPORT -UK
CLL SUPPORT - UK
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